Summer fun with Laura

At the weekend the weather was perfect for a little garden-bath party with our neighbours' daughter, Laura :)))))))

Sorry...

Sorry that I didn't blog for a while...I just didn't feel the motivation to sit down and write something... meanwhile I looked your blogs, but I couldn't write down a line, either....maybe I had a 'creative crisis'.... :)
So:

Nancy: I really enjoyed your slideshows and thoughts of the day :) I am so happy that Erik loves hippotherapy and he is so cute on the horse!!!! Give a big hug and kiss to Erik in the name of Szabi!!! I hope your blog entries win a prize, I am so proud of you, you are a really good writer!!! And yes, you are not alone...I'm really waiting for more info about Sophie's run...

Aspen: Daven looks great in his walker, soon he is going to run!!!! I'm just wondering how this little man started to make big milestones.... I wish you more and more beautiful days in the future, he is beautiful!!! So proud of him eating mandarins...I wish Szabi would do it, too :P I am so excited about his speech... I bet he'll start to speak sooner than my son....yayyy

Kerry: you really touched me with Brady's walk...you have a super family and friends, did you know this? Really enjoyed the photos of Brady, he gets cuter and cuter! You handled the ws thing with Michael perfectly...congratulations!!!

Teresa: CONGRATULATIONS on the birth of Simon!!!!!!!!!!!!!!!!!!!!!!!!!! I am so happy that everything went well... Clare looks like who is in love with his younger brother on the pic, doesn't she? I wish you calm nights and beautiful days with this 3 little ones :))))))

Amy: I am happy to hear Avery is doing well! Avery is so close to walking and talking as I noticed.... Keep it up!!! :) I hope you had more lunch (or supper???) date with this mysterious gentleman :))))))

Lisa: Tatum is beautiful!!!!!!!!! I am so happy that everything went well with her eye surgeryand she is recovering soon!!! She looks like a little angel with her curly hair :D ...and yes, she looks older...but still a cute little girl!!!!!!!!!

Matthew's Lisa: I am sorry that you didn't update your blog (maybe you are in a creative crisis, like me ;)))))))))

Kim: So happy that Ava is doing well....her eyes are beautiful and I have to say, I am jaundiced about her language skills :))) For the matter Szabi's feet are the same as Ava's and it didn't cause any problem while walking....

Nicole: Good luck with the house-building, hope everything is going well!!! I missed you...maybe you can update soon!

Noel: Hohoooo what a great school! Abi is beautiful on the pics...I'm glad you had the new camera to make these pics!!! They are all wonderful!!!Abi is so cute with the baby.... :)

Penny: love the new pics... I always see Szabi in Keith (of course a few years later)...I love him!!!! :)

Jessica: can you upload a few pics of Gage? I hope he recovered soon after the surgery!

Gina: Gianna became a really pretty girl, she is very beautiful :))))))))))

Well, about Szabi: nothing changed, he had a really ferine cold which ended up with an ear-infection.... he wasn't in his day-care for 3 weeks.....huhhh...maybe I have to start the training-in once again???? He becomes interactive and slippy every day, 1 day 1 bruise :)))))))))
No real words yet, but he gets closer and closer to say sg. meaningful :)

Love!!

Well, I am too lazy to make my blog, there are days when I don't switch on my computer... I think I became a really busy mom :)

So, the news:

1. Szabi is in the day-care from 9 to 12:30 every weekday. He loves it!!!! He loves the other kids, gives them hugs and kisses, strokes them... He didn't eat anything at the day-care, he striked...but 3 days ago he started to eat and there is no way back...today he asked for more from the celery vegetable with liver.......grrrrrrrrrr

2. I started to give him omega3 2 weeks ago and there is a good change. He eats more, became more indipendent, gives sounds all day (sometimes he was in shut-up mode for days...), became a more happy and smart kid. Maybe it is not the omega3 just the daycare...but who knows???? He started to act like a normal 2 yo kid (without speech of course...)

3. I see the changes every day in his playing, that he is observing and imitating his play mates...he is starting to use his play cars according to rules...not just spinning...

4. We bought a tricycle for him, he enjoyes it ....bye-bey stroller!!!! Of course we bought the one which has a pusher for the parent :)))))))))

A funny pic for you.... never too early.....

Love, Kati

Update3

I didn't post for a while... Szabi was ill, he is caughing yet, so he spent only 6 days in the day-care :))) Last week we had a long week-end, there was a national celebration here, so Laci could spent 4 days at home, we did our first barbecue party with friends this year!!!
The weather was beautiful, we spent a lot of time outside, prepared the garden for spring, Szabi enjoyed it very much...
He became so wilfull and dodgy, opens all door, climbs up onto the chairs and tables, if he is inside he wants to go outside, if he is outside wants to go back....huhhh, he is a real 2 years old with many types of tantrum in order to reach what he wants... Sometimes I just want to spank him, but I think it would be needless...:))))
So, there is a few new photo of him:



Being a party man :D



Just jogging...




In love with the neighbour's cat





Being sick with daddy




On the penal-sofa...thinking about what he did... :P

Love, Kati

Quick update 2

We are always in hurry.... PT and nursery, too... We were at the nursery 2 times, Szabi likes it, no crying, only when we have to go home... he gets lunch, too....these baby-menus at the nursery are gruesome: white carrot-vegetable with potatoe-puree, cheese and egg....today there was string-bean with potatoe and meat....brrrrrrrrrrr :((((((( and everything is in one plate!!!!!!!

I think Szabi is going to endure the nursery, I hope there will be no bigger problems .... knock it down... :) He didn't mind too much when he got a pat from another kid or somebody toss him away...he simply went and find another toy...or give the pat back :DDD (when the nannies didn't see it of course)

At the weekend we celebrated Szabi's birthday at my parents' house with the family, next weekend with the friends. Here is a few photo:

Love, Kati

Quick update

Sorry I didn't blog for a while.... On Tuesday and wednesday we travelled to Budapest (our capital) for a really big controll (blood, eye, teeth, heart ultrasound, kidney and belly us) and every doctor was really well-informed about ws, they saw a lot of ws-kid, so they know what are they searching for :) Every result was perfect, his SVAS didn't change anything fortunately.
If everything goes well on monday I'll take Szabi to the nursery first time.... we have to arrive at 10 and we can stay there till 12. I am so excited!!!!
Szabi has a little lympho-knot on his neck, I hope this is just a normal knot!!! The pedi said that it is normal, he had a really bad illness a month ago, maybe this is the problem or some infection is in his body now... For safety sake on monday afternnon we'll go and visit her :(

Have a nice weekend, love, Kati

I am pleased

Huhh, everything was OK yesterday, Szabi did his best: he was a smiley, pleasant kid, brought his books to the nanny, pointed out the babies from a magazine, climbed up between us while we were talking, brought wooden spoons and a can opener from the kitchen etc. I was so proud. The nanny was so pleased, too, she said she thinks there will be no problem with Szabi in the preschool. We will start the 'preschool training' on 5th march, and if everything goes well after 2 weeks we can try if Szabi takes his nap in the preschool. I am so excited!!!!
This morning we went to the preschool to meet his therapists....well, they were very-very sweetie....TOO sweetie (but under the smiling faces I felt the tenseness and what they think really)! But: Szabi gets 2*1 hour OT a week, it will be a group-therapy with 4 other kids, plus he gets 1 hour OT, too but that time he'll be alone. Plus: he gets speech therapy, too!!!! And our PT doesn't change, the preschool has no physicotherapist, Szabi loves his PT, I am so pleased that we needn't change her!!!
So the point is: I am totally satisfied now with the changes!

Ps.: Szabi did 2 milestones in the last week: reached all the door handles, so he can open every door and he can climb up to the sofa (these were the highest points which he couldn't reach by now in our house :). Maybe he grow a few centimeters plus being much tactician :DDD After a few months of doing nothing interesting he started to develop. So, moms, don't give up, our kids can surprise us suddenly :))))))))))

Do you think this little man is up to some hanky-panky???

Keep your fingers crossed!!!

Keep your fingers crossed fro us, girls, this afternoon Szabi's nanny from the preschool is going to visit our family.... She asked me to inform her about the ws, this will be the first time when I have to explain ws to someone, I wrote a little list for help :D

When I met her my first impression was that she looks like if someone mixed a a chef, a soldier and a Brunhilda (a farmer-girl) from Germany.... :) She is a little bit tremendous, but loves children. I am a little bit nervous... I cleaned up the house while Szabi has his nap, now I run and wash my hair :DDDD
Tomorrow I'll be cleverer, going to report my experiences!!!
Love from Kati and Szabi (who is 'reading' with daddy)

Update

Yesterday we went to the neurologicist just to controll Szabi's development... The doc surprised me, he said that we needn't have to come back for controls, only if we need some paper, but he is very happy when he sees Szabi is doing well, but that's all. There were no examinations or tests, just wrote a memo that Szabi is walking stably but his moving is a little lumpy and he is not speaking yet. I don't know if I jump for joy ( -1 doc!!!) or be frustrated.

Today we went to the preschool, too, I was very proud of Szabi, he took his nanny's hand and walk into the room with her, looked at the children and in the next second he walked away for play. He looked at me a few times while I was speaking with the nanny, when I called him he came to me but he wasn't so happy while we left the preschool :)))))) Official his first day will be 5th March. All of his groupmates are healthy, cute kids, I hope that it is the best choice for him. He'll get OT twice a week just as now, but his therapists will change. I try not to worry about this, because I think he didn't make a big friendship with his 2 OT, he is only love with his PT (but fortunately she won't change). His OT will be in the preschool, I am not contented with it, but I have no other chioce if I want him in a healthy group. Before the ws diagnosis we were here a few times for PT, but I felt that these therapist were a little regretful and disdainful with us. When the ws turned out they wanted me to give Szabi into their preschool in the injured group. I said no, so I think there will be a little stress between us....but I don't mind... in the worst case they won't do anything with Szabi :DDDDD He'll take this 2 hours per week with them, I think.

The good news it that I have 77 days time off work, I'll go back to work on 8th March, but with this holiday I have to go back only the end of June!!!! My boss said that he'll be happy if I'll be on holiday in July ( I have 25 days time off remained in 2007) so if everything goes well I have to work only from 18th July!!!! Hurray!!!!!!! Of course my boss asked if we want another baby.... I said yes, the sooner we can, it'll be the best for us and the best for my workplace, too (not to go back and have a baby after a year for example). he wasn't so surprised, he didn't get a shock or anything else ;)

Okay, no more news today, but here are a few pic for you!!!

1. Szabi helps cleaning up

2. Reading with daddy

3. Tea-time!

Illness

Szabi was very ill at the weekend, I think he never was so ill in his life. Fever, cough (which caused puke).... so he got antibiotics and now he got well, but is not on the top... He was clinging on me all day, and he felt himself so wretchedly that my heart broke again and again.

Today was the first day when he is up to sg. bad :))) Recovery!!!!

While he was ill he indulged in watching Sesame street on tv. I always hated this series...ha-ha....sometimes I think that Szabi is the opposite of me, he likes/hates the opposite things that I do. He is crazy for cats, I don't love them, but there are dozens of cats here...and every cat is running through our garden...huhhhh!

Here is a pic of him while watching Sesame street:

Have to got, I have a lot og things to do, which weren't done at the weekend!

Love, Kati

Curious little boy

I became a little more optimistic in the past 1-2 weeks because Szabi discovered that if he points onto sg. his crazy mom and dad say the name of the thing. So this little man goes to anywhere with his forefinger and points, looks and memorizes...and again, other thing, points, looks, memorizes.... I'm in love with him but this kind of play sometimes a little boring (and nerve-racking... for example when he is in his high chair and instead of eating he points table, chair, plate, glass, spoon, wall, shelf, lamp one ofter one...and again...and again... and if I stop he became resentful... with smaller or bigger hissy, of course :DDDDDD But I am so proud of him, because I see that he's gonna speak sometime in the future!!!!! Up to this time he pointed out for only our asking 'where is the dog, cat????' etc., but now this is some other! He became curious for the name of the things.... or maybe he only enjoys that he controls his parents' speech?

Love, Kati

Paradox

Hi Girls!

Sorry, I didn't blog for a while, but I think I had a mini depression :) Plus I got a really nice virus for my stomach, too, so I wasn't in a good mood in the past few weeks... :D
The things didn't change a lot, no more activities at Szabi, he isn't speaking yet, only says 'DADDY'... of course in hungarian... :D (it sounds like appa) But he does it with such a big empathy that his dad falls in love with him again and again...
You know, that I am so realist, but 3 days ago there was a news in the TV, what hit my heart... The story was about artificial genes. It doesn't mean anything interesting for me, I know that it would be very useful in the future, but doesn't help for my child. BUT: the shock came when I realized that all over the world there are a lot of research on artificial genes, but there is one, which is close enough to start the animal-tests... just a note before I say what caused a little shock to me: hungarian people are good at math, physics, chemistry and other natural sciences, for example the inventor of the vitamin C, dynamo, match or nowadays the oil-eater bacteriums, and unfortunately one of those scientists were hungarian, too, who made the first atom-bomb...
So, get to business: this research runs in Hungary, and exactly in Szeged, the town where I live, and the research-center is only a few streets down from us... We usually walk by the center every day...
I was in tears... to know that maybe in the future somebody can heal (or anticipate) this syndrome, but this research isn't useful for us, it can't heal my son... It was the last drop in the glass, I felt myself so miserable that never in my life.
A day after this incient I was in the grocery with Szabi and met a 12-13 nontypical boy with his dad. He had a very hoarse voice and enthuses over everything (literally!!!)... so he could be Szabi in 10 years... he waved to Szabi while they were standing behind us at the cassa and he was speaking and speaking and speaking.... his dad started to be angry, the other people started to feel themselves comfortless and suddenly a 4 yrs old girl asked his dad: look dad, there is that boy... isn't he hungarian? His dad asked why. He is speaking so strange - replied the little girl. Is he ill? I didn't hear what was the answer.... I saw our future for a second. Maybe we are going to get used to these situations... But what if Szabi will ask me: why I am not like other children? What will be my answer?
I can state bravely, that this week wasn't the best week in my life... Oh, I nearly forgot: the normal créche didn't keep up a place for Szabi, and we have to go to the integrated créche, fortunately in the healthy group, but this fight and at last the defeat was very dismal for me.
I wish a very happy and peaceful weekend to all of you....and for me, too :DDDDDDD

Love, Kati





pic 1.: We got back our baby-seat from my friend, I put Szabi in it... funny... a few monts ago it was big for him ...hay-yay...time flies!!!
pic 2.: Szabi used to keep his mouth like this in the past few weeks.... I am very pleased... his faced changed with it a lot!!! He makes himself mouth-therapy, I think... I hope it is useful for him!

Pics

Just a few pics to let you know we are alive :)))))) Nothing interesting happened to us, we are living in the "grey" week-days....

Mum tries to force me feed myself with the spoon.... what does she thinks????? NOOOOOOO!!!



Which one? The bigger or the smaller duck???



Of course the smaller one...



Is this weight-gaining enough for mommy?



Love, Kati

No title

Hi Girls!

Our 'perfect' babysitter got a new job.... this is my luck... :( I start to find another babysitter....grrrrrrrrr

I wrote that Szabi has an eating strike....well, I got his weight checked and he is more than 27 pounds (and 33 inches).... ha-ha-ha what a crazy mom I am :))))))))) I promised that I will never force him to eat if he isn't hungry :DDDDDD Sometimes I feel that I am not fair-minded with Szabi, because if he hasn't got ws he wouldn't be under a microscope (as someone in the blogs said...). I have ambivalent feelings because of it 1. I try not to put him under microscope 2. but I feel that I don't do enough for him, maybe I could be more hard-working with him.... 3. but I try to rear him as a totally normal child, so trying to leave him to do those things that he wants and not to fear of everything. For example eating his favourite chocolate alone????? :))))

Okay, it is not funny, but sometimes I forget where is the limit between normal and ws...

Bye for you now, I have to go to the kitcen, I smell that the cookie is ready!!!!!!

Today I took a few pic of Szabi, the weather is really cold here, but he doesn't want to wear gloves!!!!!!!

Despondency

I really don't know what is going to be the best for us a normal créche (sorry if I use this word, but I don't know what is the difference between créche, preschool, kindergarten etc., because here there is an institute for children age 6mos-3 yrs and kindergarten 3-6 yrs). Specialists say that Szabi has to go to a normal community, but if I see it well the head of the normal créche doesn't really want it, but the integrated créche's head really wants Szabi (I know it is all about the money unfortunately...). So we are hanging between this 2 créche.... well, I really don't know...(Note: Integration doesn't work as well here as in the USA!)

But the good news is I found a really good babysitter for Szabi, she worked at the integrated créche but he started a new university that's why she got the push... She is a teacher for nontypical children, she is 28 yrs old, but her husband has a really good job so the babysittering is just a hobby for her beside studying and she really wanted to work with a nontypical child. We agreed that she will carry him to PT and OT, then back to the créche and if Szabi is ill she is at home with him!!! Hurray!!!!!! I don't dare to beleive that I have such a luck!!!

Szabi's strike on food is still on.... tomorrow I want to weight him at the doc, because I think he lost weight... he eats only heavy foods for adults (but he eats only a little portion...), spaghetti bolognese, pizza, bread, cookies, no veggies except pumpkin and courgette and no fruits!!!! I can't stuff him as a goose!!!!!

His favourite nonfood is kuki which is extrudated corn with oil and salt, it has got a funny name with 2 meanings: 1. corny 2. weenie, so it's so funny when I ask in a supermarket where can I find the weenie :DDDDD

Here is Szabi with his favourite weenie :)

And I nearly forgot about Cheerios :))))))

Did you know that Cheerios is more delicious from a potty?

And he is acting like a little soldier :

Bye for now, I hope everyone has a nice week!!!

Ps.: Congratulations to Daven and his mom for the hardworking and the result!!!! :))))))

PT at Hungary

As I promised I took a few photo yesterday to share with you how a PT goes here :) I am so curious what is the difference between therapies here and at you.

So, here are the pics:

At first a little warm-up with weights on his legs. He can walk and play with his favourite toys while watching others childrens' therapies.










Streching while swinging, after there is a short gym on the ground, a little massage etc.












Big ball, Szabi hated it a few weeks ago, nowadays this is not the favourite, but at least he tolerates it :)











Riding on the ball...

This is a swaying bench, he has to poise himself on it.

He has to walk through this hand-made seesaw not putting down his legs on the ground (to correct his wide-walking)

Climbing and/or jumping on the big ball :)

Stepping on the stairs :DDDD

Running just like mom does ...haha

This tool is like a skateboard, we used to spin and push him or he has to pull himself with his hands while he is on his belly.

And at the end of the therapy he used to do with the therapist a few somersaultes and make him to move like a barrow (on the last pic)

So, Szabi used to do these on a PT, it is a strange feeling while I look through these pics, it is so evident and natural for us to have therapies, but I am sorry that I am not on the 'other side', one of those moms who are only hearing these scary-stories about nontypical children. I can't imagine how much more time I have if we shouldn't go to these therapies.... maybe we were boring :DDDD

Love, Kati