Friday, January 12, 2007

Paradox

Hi Girls!

Sorry, I didn't blog for a while, but I think I had a mini depression :) Plus I got a really nice virus for my stomach, too, so I wasn't in a good mood in the past few weeks... :D
The things didn't change a lot, no more activities at Szabi, he isn't speaking yet, only says 'DADDY'... of course in hungarian... :D (it sounds like appa) But he does it with such a big empathy that his dad falls in love with him again and again...
You know, that I am so realist, but 3 days ago there was a news in the TV, what hit my heart... The story was about artificial genes. It doesn't mean anything interesting for me, I know that it would be very useful in the future, but doesn't help for my child. BUT: the shock came when I realized that all over the world there are a lot of research on artificial genes, but there is one, which is close enough to start the animal-tests... just a note before I say what caused a little shock to me: hungarian people are good at math, physics, chemistry and other natural sciences, for example the inventor of the vitamin C, dynamo, match or nowadays the oil-eater bacteriums, and unfortunately one of those scientists were hungarian, too, who made the first atom-bomb...
So, get to business: this research runs in Hungary, and exactly in Szeged, the town where I live, and the research-center is only a few streets down from us... We usually walk by the center every day...
I was in tears... to know that maybe in the future somebody can heal (or anticipate) this syndrome, but this research isn't useful for us, it can't heal my son... It was the last drop in the glass, I felt myself so miserable that never in my life.
A day after this incient I was in the grocery with Szabi and met a 12-13 nontypical boy with his dad. He had a very hoarse voice and enthuses over everything (literally!!!)... so he could be Szabi in 10 years... he waved to Szabi while they were standing behind us at the cassa and he was speaking and speaking and speaking.... his dad started to be angry, the other people started to feel themselves comfortless and suddenly a 4 yrs old girl asked his dad: look dad, there is that boy... isn't he hungarian? His dad asked why. He is speaking so strange - replied the little girl. Is he ill? I didn't hear what was the answer.... I saw our future for a second. Maybe we are going to get used to these situations... But what if Szabi will ask me: why I am not like other children? What will be my answer?
I can state bravely, that this week wasn't the best week in my life... Oh, I nearly forgot: the normal créche didn't keep up a place for Szabi, and we have to go to the integrated créche, fortunately in the healthy group, but this fight and at last the defeat was very dismal for me.
I wish a very happy and peaceful weekend to all of you....and for me, too :DDDDDDD

Love, Kati





pic 1.: We got back our baby-seat from my friend, I put Szabi in it... funny... a few monts ago it was big for him ...hay-yay...time flies!!!
pic 2.: Szabi used to keep his mouth like this in the past few weeks.... I am very pleased... his faced changed with it a lot!!! He makes himself mouth-therapy, I think... I hope it is useful for him!

6 comments:

Amy said...

Kati,
Be happy for today becuase Szabi is wonderful and perfect as far as I am concerned. Keep moving foward, I am sure these dismal times will pass, big cyber hug to you!!!!!!!!

Lisa said...

K- I missed you...Sorry you were having such a rough time. Szabi is getting so big, you really are doing a fantastic job.

Kerry said...

I'm glad you're back, but I am feeling for you because I know you're having a rough time. It is so hard that we don't know how things are going to be... but I am amazed at how great Szabi is doing now! He is such a little man! Just keep focused on the here and now because you have a lot to be proud of. :)

Nancy said...

The future scares me, too, a lot. I'm having a really rough time these days as well.

Whatever happens, know that I am thinking of you and think you are a wonderful mommy.

Nicole said...

Kati, I am so glad you are back. I've been thinking of you and worried about you. I hope things get better real soon. Szabi is doing so wonderful. Love the pictures.

Aspen said...

Katie I have missed you terribly. Like I said before, last week was terribly hard for me as well. I suppose it will come and go for me for the rest of Daven's life.

I love the new pictures. He is such a precious little man. Someday we will get to have face to face interaction and give you all a giant hug!

LOVE LOVE LOVE